It’s hard to believe that it’s been an entire year since we made the life-changing decision to leave Houston and move Lane’s medical care to Austin. Looking back, without a doubt, it was one of the best decisions I’ve ever made. The journey has been filled with ups and downs, but what matters now is that we are home. Well… technically, our temporary home, but home nonetheless. And it feels like a triumph to be here, together as a family, especially with the holidays upon us.
When we first arrived in Austin, I didn’t know what to expect. The move was emotional, overwhelming, and uncertain. Lane’s condition had reached a critical point, and we were facing so many unknowns. But as time passed, the support we received from the medical staff here, especially at TCH Austin, helped us feel like we had made the right choice. They exhausted every option within reason, working with us in ways that made me feel heard and supported. I stand firm in knowing that they did everything they could to help Lane, and that is something I will forever be grateful for.
The reality of our current situation is that we are at home on hospice care, a bittersweet fact that has brought with it both peace and sadness. We know Lane is in the best place he can be for his needs, surrounded by love and comfort. But the truth is, nothing could have prepared me for the emotional rollercoaster of having to face this chapter. The journey has not been easy, but the fact that we are here, together, is what keeps us moving forward.
This holiday season is incredibly special to me. Since Lane was born, I have not had the chance to spend a holiday season at home with my family, and this year, we are finally here. There have been so many moments where I’ve been humbled to tears—overwhelmed with gratitude for the time we’ve had together and the memories we are still making. It’s difficult to put into words just how precious these moments are, but I’ll cherish them forever.
Throughout this journey, there have been moments of doubt and fear, but also moments of profound love and gratitude. I know that I’ve never shared many details about why we left Houston, and I feel that now, after having a year to reflect and process everything, I can speak about it more objectively. It’s not something I’ve been ready to talk about until now, but I know that sharing our experience will help others who might be going through similar challenges.
A lot has changed in the past year, but one thing that has remained constant is the love and support we’ve received from all of you. So many of you have reached out, asking about Lane’s needs and how you can help. Your kindness has been overwhelming, and it’s a reminder of the incredible community that surrounds us. To those of you who’ve asked about a wish list for Lane, I want to thank you from the bottom of my heart. Lane has so many needs, and it means the world to me that people care enough to want to help. Although we weren’t able to salvage much in the way of material things, the love and support we’ve received has been more than enough.
I don’t take any of this for granted. I’ve seen firsthand how quickly life can change, and I am forever grateful for every day that we have with Lane. His strength and resilience continue to inspire me, and I find myself constantly amazed by how far we’ve come together as a family. There’s still so much uncertainty ahead, but in these moments of quiet, I find peace knowing that we’re here, together, and that no matter what comes next, we will face it with love, hope, and gratitude.
To everyone who has followed our journey, prayed for us, and supported us in any way, I want to say thank you. Your kindness and encouragement have been a constant source of strength for our family. We have felt every prayer, every message, and every act of love that has come our way. And for that, we are beyond thankful.
As we move into this holiday season, I ask for continued prayers for Lane and our family. Please pray for strength, for peace, and for the continued love that has carried us through this journey. We are forever grateful for the support we’ve received, and we are so blessed to have each and every one of you in our lives.
Thank you for being a part of this crazy journey with us. We are not done yet, and with your continued love and support, we know we will keep going, day by day. Here’s to a holiday season filled with love, reflection, and gratitude for all of you who continue to stand by us.
