Landry’s fight has always been one of resilience and courage, but today’s update reminds us just how unpredictable and challenging the road to recovery can be. What her family shares is not the update they were hoping for, yet it reflects the raw, real, and emotional journey of a child fighting for her life, and a family holding on to faith every step of the way.
Yesterday, Landry’s PD port began to leak, reaching 40 milliliters. This complication forced doctors to pause her dialysis, leaving her more swollen than usual. Swelling is not just uncomfortable—it directly affects how her body functions, including her breathing. The medical team adjusted her treatment,
reducing the fill volume to 30 milliliters in hopes of preventing further leakage while allowing her body to rest. Plans are in place to reintroduce dialysis on Carpediem tonight, with the potential for surgery tomorrow to place another stitch if needed. Landry’s family prays fervently that no further leakage occurs, but they are preparing for every possibility with both caution and hope.
Despite this setback, there are encouraging signs. Landry’s ventilator settings remain steady, her blood gases are good, and she has not required additional respiratory support. Typically, swelling can make breathing more difficult, so maintaining these stable readings is a quiet yet meaningful victory. However, her
planned steroid treatment and extubation attempts have been postponed. Doctors want her swelling to decrease and fluid to be minimized to give her the best chance of keeping her breathing tube out once it’s removed. While medically sound, this decision carries emotional weight for her family, who were hopeful for progress in this area. As her mother shared, it’s hard not to feel disheartened when every small step forward seems to be met with new obstacles.
Amid these challenges, there are still reasons to celebrate. Landry is off blood pressure medications and has resumed
feeding, both of which are significant signs of improvement. In a journey defined by uncertainty, even small milestones are big victories. They remind her family that progress is possible, even when it feels like setbacks dominate the day. Every feed she tolerates, every ounce of fluid removed, and every stable breath is a testament to her strength and the care surrounding her.
The reality of dialysis is another ongoing challenge. No parent wants to see their child rely on such invasive support, and yet, in Landry’s case, it is a lifeline. Her family continues to pray for her kidneys to recover on their own, to reach that breakthrough moment when her body no longer needs artificial support. They remain steadfast in their faith, believing that
every complication, every setback, and every treatment is part of a bigger plan.
Even as exhaustion and heartache weigh heavily, Landry’s family turns to prayer—not just for her physical healing, but for the strength of the entire household. They ask for prayers for the
PD port to remain intact, for fluid to be removed safely, for her breathing to stay stable, and for a breakthrough that brings her closer to recovery. These prayers are a lifeline, not only spiritually but emotionally, offering hope amid uncertainty and a sense of connection to others who care and stand with them.
The update continues with a reminder that setbacks can return at any moment. Today, the PD port began leaking again, prompting her medical team to
hold feeds and restart Carpediem dialysis tonight. Each new complication is met with preparation, faith, and resilience. Landry and her family are learning to navigate the delicate balance between hope and realism, holding on to the belief that healing is possible, even when progress seems slow.
Through it all, Landry’s journey is a story of courage beyond her years. She endures treatments, procedures, and setbacks that no child should ever face, yet continues to inspire those around her. Her family’s unwavering faith, even in the midst of heartbreak, underscores the power of hope and the human spirit. They continue to trust that God’s plan is unfolding, even when it is difficult to understand, and they are committed to
celebrating each small victory along the way.
In times like these, every smile, every stable reading, and every small moment of comfort carries immense significance. They are reminders that
Landry is strong, resilient, and surrounded by love—a love that fuels her fight, sustains her family, and inspires everyone watching her journey.
As prayers continue and the family navigates each twist and turn, Landry’s story is a powerful testament to
faith, perseverance, and hope. It is a reminder that even when the road is difficult and filled with setbacks, every step forward matters, and every act of care, every prayer, and every expression of love makes a difference.
Please join in praying for Landry’s health, her PD port, her breathing, and her family, as they continue to navigate this challenging journey. Their strength, faith, and resilience are extraordinary, and every message of support contributes to the hope that Landry will experience the breakthrough she so desperately deserves. 💛
